The Lymphoedema Registry is a database that provides a way to collect information from people living with lymphoedema. This information is then used to inform the lymphoedema community and health service providers of the experience and needs of people living with lymphoedema. The aim is to improve the lives of those living with lymphoedema by using the data to collaborate with organisations to advocate for improved treatment and to provide statistics for public health information and research.
Having a national lymphoedema registry means being able to answer fundamental questions about the lymphoedema population within your country – such information is invaluable for improving the lives of people with lymphoedema.
The data in a registry has strategic power for lobbying and the ability to prove to authorities that people with lymphoedema exist.
We need your help!
If you have lymphoedema, then please join the Lymphoedema Registry (ANZLoR).
You can help others join the registry too, but promoting it at clinics, in waiting rooms and at functions.
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